Pagi ni tak ada tutorial, tetapi ada seminar pasal 'disability'. Dr. Flanagan, one of the Consultant Paediatricians yang handle seminar ni. It is interesting sebab Dr. Flanagan jemput salah seorang ibu yang anaknya ada disability untuk bersama2 discuss ngan kitaorang. Mrs. F yang dijemput oleh Dr. Flanagan ni sangat baik orangnya. Dari ceritanya, aku dapat rasa dia ni seorang ibu yang sangat tabah. Her daughter E, was a preterm baby. She was born at 26 weeks gestation by caeserian section because Mrs. F had pre-eclampsia. She is now 4 years old. From the story, E had hypermagnesuimia that cause severe brain damage and lead to cerebral palsy. She had a spastic quadriplegia type of cerebral palsy in which there is a damage to the upper motor neurone pathway. So, she cannot do anything for herself and require 100% help from others.
E is lucky to have a mother like Mrs. F. She really loves her dauhgter and she willing to sacrifice anything...
E is lucky to have a mother like Mrs. F. She really loves her dauhgter and she willing to sacrifice anything...
Words from Down's Syndrome mom...
WELCOME TO HOLLAND
by
Emily Perl Kingsley.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
*Selain blaja pasal 'disability and child care', ada something gak yang melekat di kepala aku arini: DOCTOR IS A HUMAN...SO, ACT AS A HUMAN.....perlu ada perasaan bertimbang rasa dan belas kasihan especially bila nak bgtahu bad news. According to Mrs. F, people usually think DRs are not human. Erm, tak bagus tuh..
Anyway, try our best to be a good student, a good future doctor, a good person, a good daughter, a good wife (in future la...), and of course a good muslimah in worshipping Allah swt. Insya Allah..
*p/s: Untuk rakan-rakanku yang disayangi, Dr. Flanagan ckp dia tgh try tuk masukkan soklan 'disability' dalam paper....so, penting gakla topic nih =)
wallahualam
*Selain blaja pasal 'disability and child care', ada something gak yang melekat di kepala aku arini: DOCTOR IS A HUMAN...SO, ACT AS A HUMAN.....perlu ada perasaan bertimbang rasa dan belas kasihan especially bila nak bgtahu bad news. According to Mrs. F, people usually think DRs are not human. Erm, tak bagus tuh..
Anyway, try our best to be a good student, a good future doctor, a good person, a good daughter, a good wife (in future la...), and of course a good muslimah in worshipping Allah swt. Insya Allah..
*p/s: Untuk rakan-rakanku yang disayangi, Dr. Flanagan ckp dia tgh try tuk masukkan soklan 'disability' dalam paper....so, penting gakla topic nih =)
wallahualam
2 comments:
i like this one..
=)
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